The Health Related Quality of Life of children living with a physical disability attending Physiotherapy at Meerhof School in the North West Province.

  • M. Ras
  • A. Human
  • M. D. Tshabalala

Abstract

Background and purpose: Understanding Health Related Quality of Life (HRQoL) is important to therapists working in special schools in order for them to treat their learners holistically. The main purpose of the study was to describe the HRQoL of learners living with a physical disability attending physiotherapy at Meerhof School in the North West Province.

Methods: A quantitative descriptive cross-sectional study design was used by making use of the KINDL® interview questionnaire which consists of a 12-item Likert Scale. The sample in this study comprised of 30 learners presenting with physical disabilities attending physiotherapy at Meerhof School.

Results: Participants’ ages ranged between six and 20 years with a mean age of 13. The majority of the participants were male (77%), and most of the children reported to have two siblings (33%). From the six domains of the KINDL® questionnaire, the Family and Friends domains were the highest with mean scores of 91.7% and 89.4% respectively. The mean scores of both Personal and Emotional well-being domains ranked lowest with scores of 78.9% and 78.3%. The total HRQoL scores of the learners were exceptionally high with an average score of 84.2%.

Conclusion: Despite their disabilities, learners with physical disabilities at Meerhof School
reported a high level of HRQoL.

References

Abresch, R., Seyden, N., & Wineinger, M. (1998). Quality

of life. Issues for persons with neuromuscular diseases. Physical Medicine and Rehabilitation Clinics of North America, 9(1), 233–248.

Baker, T., Haines, S., Yost, J., DiClaudio, S., Braun, C., & Holt, S. (2012). The role of family-centered therapy when used with physical or occupational therapy in children with congenital or acquired disorders. Physical Therapy reviews, 17(1), 29-36.

Bendixen, R.M., Senesac, C., Lott, D.J., & Vandenborne,

K. (2012). Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability and Health. Health and Quality of Life Outcomes, 10(43), from http://www.hqlo.com/content/10/1/43.

Bullinger, M., Mackensen, S., & Kirchberger, I. (1994). KINDL - ein Fragebogen zur gesundheitsbezogenen Lebensqualität von Kindern. Zeitschrift für Gesundheitspsychologie 2, 64-67.

Carlon, S., Shields, N., Yong, K., Gilmore, R., Sakzewski, L., & Boyd, R. (2010). BioMedCentral: Pediatrics. Retrieved October 27, 2012, from http://www.biomedcentral.com.

Dyches, T.T., Smith, T.B., Korth, B.B., Roper, S.O., & Mandleco, B. (2012). Positive parenting of children with developmental disabilities: A meta-analysis. Research in Developmental Disabilities, 33, 2213–2220.

Eser, E., Yuksel, H., Baydur, H., Erhart, M., Saatli, G., Cengiz Ozyurt, B. et al. (2008). The psychometric properties of the new Turkish generic Health-Related Quality of Life Questionnaire for Children (Kid-KINDL) [Turkish]. Turkish Journal of Psychiatry, 19(4), 409-417.

Gold, J.I., Mahrer, N.E., Yee, J., & Palermo, T.M. (2009). Pain, fatigue and health related quality of life in children and adolescents with chronic pain. Clinical Journal of Pain, 25(5), 407-412.

Gordeev, V.S., Maksymowych, W.P., Evers, S.M., Ament, A., Schachna, L., & Boonen, A. (2010). Role of contextual factors in health-related quality of life in ankylosing spondylitis. Annals of the Rheumatic Diseases: The Eular Journal, 69, 108-112.

Grootenhuis, M.A., De Boone, J., & Van der Kooi, A.J.,

(2007). Living with muscular dystrophy: health related quality of life consequences for children and adults. Health and Quality of Life Outcomes, 5, 31.

Jelsma, J., & Ramma, L. (2010). How do children at special schools and their parents perceive their HRQoL compared to children at open schools? Health and Quality of Life Outcomes, 8(72).

doi:10.1186/1477-7525-8-72.

Jensen, M.P., Abresch, R.T., Carter, G.T., & McDonald,

G.M. (2005). Chronic Pain in Persons With Neuromuscular Disease. Archives of Physical Medicine and Rehabilitation, 86, 1155-1163.

Jensen, M.P., Moore, M.R., Bockow, T.B., Ehde, D.M., & Engel, J.M. (2011). Psychosocial factors and adjustment to chronic pain in persons with physical disabilities: a systematic review. Archives of Physical and Medical Rehabilitation, 92 (1), 146–160.

King, S.,Teplicky, R., King, G., & Rosenbaum, P. (2004). Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature. Seminars in Pediatric Neurology,

(1), 78-86.

Law, M., Hanna, S., Annaby, D., Kertoy, M., King, G., & Xu, L. (2014). Health-related quality of life of children with physical disabilities: a longitudinal study. BMC Pediatrics, 14(26), 1-10.

Noyes, J., (2006). Health and quality of life of ventilator- dependent children. Journal of advanced nursing,56(4), 392–403.

Palisano, R.J., Chiarello, L.A., King, G.A., Novak, I., Stoner, T., & Fiss, A. (2012). Participation-based therapy for children with physical disabilities. Disability & Rehabilitiation, 34(12),1041 - 1052.

Potter, J., Cantarero, R., & Wood, H. (2012). The Multi- dimensional Nature of Predicting Quality of Life. Procedia- Social and Behavioural Sciences, 50,781-790.

Ravens-Sieberer, U., & Bullinger, M. (1998a). Assessing the health related quality of life in chronically ill children with the German KINDL : first psychometric and content- analytical

results. Quality of Life Research,4(7).

Ravens-Sieberer, U., & Bullinger, M. (1998b). News from the KINDL-Questionnaire – A new version for adolescents. Quality of Life Research, 7, 653.

Ravens-Sieberer, U., & Bullinger, M. (2000). KINDL :

Questionnaire for measuring health-related quality of life in children and adolescents manual (Revised Version ed.). (Copyright: ©Ulrike Ravens-Sieberer & Monika Bullinger, 2000).

Ravens-Sieberer, U., Gortler, E., & Bullinger, M. (2000). Subjective health and health behaviour in children and adolescents: a questionnaire study in co-operation with Hamburg school physicians. Gesundheitswesen, 62, 148–

Solish, A., Perry, A., & Minnes, P. (2010). Participation of Children with and without Disabilities in Social, Recreational and Leisure Activities. Journal of Applied Research in Intellectual Disabilities, 23(3), 226-236.

Vargus-Adams, J. (2005). Health-related quality of life in

childhood cerebral palsy. Archives of physical medicine and rehabilitation, 86(5), 940–945.

Wee, H.L., Ravens-Sieberer, U., Erhart, M., & Li, S.C. (2007). Factor structure of the Singapore English version of the KINDL children quality of life questionnaire. Health and Quality of Life Outcomes, 19(5),4.

Wille, N., Badia, X., Bonsel, G., Burstrom, K., Cavrini, G.,

& Devlin, N. et al. (2010). Development of the EQ-5D-Y: a child friendly version of the EQ-5D. Quality of Life Research, 19(6), 875–886.