Challenges experienced while providing home based care: a community organisation's experience

  • R. M. Ramuhaheli Department of Human EcologyUniversity of the Western Cape
  • C. J. Erasmus Department of Human EcologyUniversity of the Western Cape

Abstract

The large and ever-growing number of people being infected with HIV/AIDS, led to health professionals being unable to cope with these increasing numbers. To combat this challenge, an alternative strategy such as home based care needed to be implemented. When attempting to attend to this need, a deeper understanding of the challenges facing community organizations when providing home based care is necessary in order to formulate these effective and relevant care services. The aim of the study was to explore the challenges faced by Umtha Welanga Community Organization in the provision of HIV/AIDS home based care.

Acase study using a qualitative approach with in-depth interviews as the data collectionmethod was used.
The Umtha Welanga Community Organization constituted the total population therefore no sampling was applied. All themembers of the management team and all the home-based caregivers were interviewed. Informed consent as well
as consent for recording interview was obtained prior to data collection. Respondents were informed that participation is voluntary and that they can withdrew at any time. Data analysis began immediately after completion of all the interviews by transcribing and translating the audio-taped data. Thematic analysis was used in which data was coded and categorized.

The main areas of concern were gender inequality, insufficient funding, lack of disclosure and trust, risk faced by caregivers and lack of recognition.

Finances appear to be, both for the organization and the home based carers, a specifically influential obstacle in the implementation and maintenance of the services. Lack of recognition by the government and lack of trust and disclosure towards care workers; create difficult conditions for them to perform their tasks and duties. Care services also present risks and dangers to caregivers such as being susceptible to criminal activity, feeling unsafe and vulnerable

References

Ankitola, O. (2004). The gendered burden of home based care giving. Policy Brief: Health Economics and HIV/AIDS Research Division (HEARD). University of KwaZulu-Natal, Durban, 1-5.

Ankitola, O. (2008). Defying all odds: Coping mechanism with the challenges of volunteer care giving for patients living with HIV/ AIDS in South Africa. Journal of Advanced Nursing, 63(4), 357-365.

Braun, V. & Clarke, V. 2006. Using Thematic Analysis in Psychology.Qualitative Research in Psychology. 3:77-101.

Browning, E. (2008). Bringing HIV/AIDS Care Home: Investigating the value and impact of community based care in Botswana. Gaborone. Botswana.

Campell, C. & Foulis, C. (2004). Creating context for effective home based care of people living with HIV/AIDS. Curationis, 27 (3), 5-14.

Campbell, C., Nair, Y., Maimane, S. & Sibiya, Z. (2008). Supporting people with AIDS and their carers in rural South Africa: Possibilities and challenges. Health and Place, 14(3), 507-518.

Dangeid, S., Sedumedi, S. D. & Duckert, F. (2009). Exploring

perception and emotional burdens of HIV/AIDS health care workers. South Africa.

Kang'ethe, S.M. (2009). Challenges impacting on the quality of care to persons living with HIV/AIDS and other terminal illness with reference to Kange Community Home Based Care Programme. Journal of Social Aspects of HIV/AIDS, 6(1). Pg numbers

Kangethe S.M. (2009). Critical coping challenges facing caregivers of persons living with HIV/AIDS and other terminally ill persons: The case of Kange care program, Botswana. Indian Journal of Palliative Care, 13(15):115-21.

Liveng, R., D. (2010). Multiple Stressor in the context of HIV/AIDS caregivers. Journal of Social Aspects of HIV/AIDS, 7(2).pg

Numbers National Association for Home Care & Hospice, (2006). Home Facts and Statistics. http://www.nahc.org/hospicefs06.pdf.

Ndaba-Mbatha, R.N. and Siloilwe, E.S. 2001. Home Based Care of the terminally ill in Botswana: Knowledge and Perceptions. International NursingReview. 47(4), 218-223.

Ntsutebi, E.R.Walley, J.D.,Mataka, C.F. & Simon, (2001). Scaling up HIV/AIDS and TB home Based Care: Lessons from

Zambia. Health & Planning, 16(3), 240-247. Oxford University Press.

Odek, A.W. & Odoo, J. 2007. Challenges facing Community Home Based Programmes in Botswana: Eastern Africa

Social Science Research Review. 33(2), 1-17 Michigan State University Press.

Ogden, J., Esimen, S.& Grown, C. (2004). Expanding the care continuum for HIV/AIDS: Bringing carer into focus. International Center for Research on women Horizon (ICRW).

Opiyo, P.A. Yamano, T. & Jayne, T.S. (2008). HIV/AIDS and home based care health care. International Journal of Equity Health, 7(8).

Pallangyo, E. & Mayers, P. (2009). Experiences of informal female caregivers providing care in Dar es Salaam. Journal of the Association of Nurses in Aids Care, 20 (6), 481-493. Tanzania.

Russell, M. and Schneider, H. (2000). A rapid Appraisal of Community based HIV/AIDS Care & Support Programmes in

South Africa. Centre for Health Policy. University of Witwatersrand. Johannesburg, South Africa.

Sadler, K. Bahwere, P. Guerrero, S. and Collins, S. (2005). Community Based Therapeutic Care in HIV affected populations. Royal Society of Tropical Medicine and Hygiene, 100(1). 6-9.

Scheneider, H. Hlope, H. & Van Ransburg, 2008. Community health workers and the response to HIV/AIDS in SouthAfrica:

Tensions and Prospects. Health Policy and Planning. 23 (3). 179-187.

Tufts, K.A.,Wessell, J. & Kearney, T. 2010. Self-care behaviours of African American women living with HIV: A Qualitative perspective. Journal Association Nurses AIDS Care, 21(1), 36-52.

UNAIDS, (2000). Caring for carers: Managing stress in those who care for people with HIV and AIDS. Geneva, Switzerland.

UNAIDS, (2005). Expanding access to HIV treatment through community based organization. Geneva. Switzerland.

UNAIDS. (2008). Care giving in the Context of HIV/AIDS. Geneva. Switzerland.

UNAIDS, (2009). Supporting Community Based Response to AIDS: A guidance tool for including community proposal

systems strengthening in global Fund. Geneva. Switzerland.

UNICEF, (2004). Evaluation of the care and support of orphaned children by the elderly project in Tete Province. Geneva. Switzerland.

USAID, (2002). Implementing multi- sectoral approaches: A Preliminary Review of USAID experiences.

US Department of Health. (2006). HIV/AIDS Palliative Care Guidance#. United State of America.

Section
Articles